We love this book-"My Tubey: A day in the life of a Tube Fed Boy".
J and L love sitting down and listening to the story. L always has to
pull up his shirt and show his tube when we read it. This book came
about because a mom (Rhiannon Merritt-Rubadue) wanted a kid's book for
her toddler who was tube fed. The toddler was starting to notice that no
one else in her family had a feeding tube and there were no books
written for kids about children with feeding tubes. She didn't get to
writing it immediately as she was busy with a tubey toddler and siblings but her idea remained active in her head. In 2011 she wrote
"My Tubey: A Day in the Life of a Tube Fed (Boy/Girl)". I love that she
wrote a book for a boy and a book for a girl. We found out about this
book from a support group we were attending for parents of special needs
children. The book hadn't been published yet but we anxiously waited
until it was for sale and got it as soon as it was available. The boys
were too young to really understand what it all meant at that time but
now they understand and like hearing the story.
L loves to sit and look at pictures.
She is currently writing several more books including:
- There's More Than One Way to Eat
- Bye-Bye Tubey: It's Time to Remove My Tube!
- My Tubey Goes to Preschool
From what I can tell none of the new books are not out yet but
looking at her facebook page there was a comment stating that she is
working hard to get the first book finished and it should be out in
September. I am looking forward to seeing and getting the Bye-Bye Tubey
book whenever it gets published. I pray we get to read it to L to prep
him for getting his tube out soon (like within the next 2 years).
Take a look around her website there are several different thing to point out:
You can go to the My Tubey website or you can also click on the tab above for our Amazon store to find the books.